Sunday 4 December 2016

How Christmas and the Naturopath Found Me Again

I am Christmas Crazy this year. This is new.



It started a few weeks ago when I texted my BFF:
"Just bought the old MWS, Amy Grant, and James Last Christmas albums on my phone. But every time I start listening to them, I cry. Why does this keep happening?"

My BFF is all things music, including her own music school, (which she just won an award for) so I assumed she would have implicit understanding as to why this vexing phenomenon kept occurring.

She replied:
"Ya I know. Me too. A kinder simpler, easier time."

And I was relieved, at the very least, that I'm not completely losing my marbles.

But later that week, as I played these albums in my car, I began to think there's something even deeper going on in my connection to this music. Certain songs reflecting a magical quality still make my eyes sparkle and leave me with a sense of wonder, and that's where my tears kept spilling. I know I used to have the wonder when I was a kid, but the last few years I've been so beaten down by life, I had no magic left... no life left, really.

In my professional work, I teach a class to grade 10 students called, "Losing Yourself, Finding Yourself, and the Journey In Between."  At the beginning of the class we talk about what it means to lose ourselves. Firstly, how do you even know what "yourself" is in the first place? Especially when you're in grade 10.  So we start by connecting with who we really are, and I tell them "Who you really are is who you were when you were a little kid, just playing." And then we recount our favorite play activities: action figures/dolls, Lego, hide and seek, little green army men, etc. Then once we've re-connected with our inner little kid, we look at what separates us from that little kid: stress, bullying, trying to fit in, trauma, suffering, etc. We then look at numbing behaviours we engage in to relieve the suffering, and how if we never move beyond those numbing behaviours, we never get back to that little kid again (who you really are). (Materials credit: Brene Brown, Gabor Mate, Richard Rohr).

Back to the Christmas music, I realized the parts that caused me to cry were the parts that caused/created stillness, holiness, awe, magic, and tenderness. And as I kept experiencing the feeling of awe in the mysterious and magical components in the music, I realized that I have finally re-connected with my real self again. I, Karen, had come back to life after totally losing myself to trauma, heartbreak (read earlier blog entries) and suffering.

Okay. I was aware that I am feeling more like my old self since I started some naturopathic supplements in October (apparently I was a little dopamine deprived). But why have I failed to connect with Christmas for so long? Its not just the suffering and trauma of being a single parent to a non-verbal child with profound autism. Because I was struggling with lack of Christmas magic for much longer than that. And then I remembered that Christmas music was reviled in our home previously, including a ban on any singing along. I still played it quietly where it wouldn't upset others, but I couldn't express joy, delight, or childlike awe with it. Of course when one is in the midst of such dynamics, its nearly impossible to identify what's really going on in such circumstances, and I continued to mute Christmas so as to keep all members of the household unagitated. And as I stuffed my Christmas spirit further and further down, hid it away with my inner child, and waited until it was safe to come out again... And it wasn't safe to come out again until my neurotransmitters had re-balanced after the last 10 years of trauma.

It all made me think about what the true Spirit of Christmas really is. As a person of Christian heritage, I believe it starts with the birth of a little baby who brought new life to a weary world. (Of which we celebrate in winter, although it seems Jesus of Nazareth was more likely born in spring).

But the point is, celebration of new life.
Of fragility.
Of vulnerability.
Of fleeting awe.
Of mystery.
Of beauty.
Of the essence of life itself.


Merry Christmas!






Saturday 2 July 2016

Love, Life and 50 First Dates.

So the latest ASD development in me and my 5 year old's life is that he no longer sleeps his meager 10-11 hours a day. Now he sleeps 8-9 hours a day, and he doesn't go to sleep until 10 or 11pm. This is a tough adjustment for me as, even when childless, I was always ready for sleep by 9:30pm. For the last year or so, he's gone to sleep between 7-8pm, leaving me an hour or so for personal time and unwinding before bed. I don't get that anymore.

I've decided to cope with this 8pm-11pm time lag in his bedroom, waiting for sleep, by reading.

This weekend I was pleasantly surprised to find an entire change of perspective from an unexpected source: Wildflower by Drew Barrymore.




Drew was talking about her movie magic with Adam Sandler, and specifically referencing the movie 50 First Dates, which I love. If you haven't seen it, its rom-com about a marine biologist who falls in love with a girl who was in a car accident, causing her to lose her memory every time she goes to sleep, effectively re-setting her brain back to the morning of the day she had her accident. The theme of the movie that Drew references in her Wildflower book, is that you have to fall in love each and every day with your life that you have. (Honestly, I'm not sure I noticed that theme in the movie; it was purely entertainment for me).



But reading Drew talk about falling in love with the life that you have (and she had a lot of negatives going on too), I started to think about that question for myself. And I think I am in love with the life that I have -- I really can't imagine life without my profoundly autistic and adorable son -- but I let myself get so overwhelmed and flustered that I don't have ability to realize and/or experience the love half the time. Not unlike those of us who love the surf, but its like I'm always caught in the barrel of the wave, I can't tell which way is up, and it makes me forget that I love the surf, because it always ends up becoming about survival. And that lets fear in. And fear steals the love if you let the fear reign.

And yet simply realizing that I AM in love with the life that I have, re-energized me from an 8 week slump of extreme exhaustion and overwhelm (ok, I also got a rare 10 hours of sleep the night before, so that might be part of it too). So how do I get back to being in love with the life that I have, everyday?

My thoughts returned to the resolution of the 50 First Dates movie (spoiler alert). Lucy's (Drew's character) new husband and family help her life to move forward from that one day where her memory starts from every day, by making her a video tape. Now every morning when Lucy wakes in her bedroom there is a video tape, and it shows her that she had a car accident, footage of her recovery and her current memory problem. Then it goes on to show that she met and fell in love with this awesome guy (Adam Sandler's character) and they got married, and had a kid who is now 4 or 5 years old, and while it looks just like her bedroom before the accident, it turns out they're actually on a research vessel in Alaska with their daughter. And Lucy cries in amazement as she watches these incredible events of her life unfold in front of her over a few minutes. At the end of the tape she is invited to join her family (including her dad) up on the deck for coffee and everyday she meets her husband and daughter for the first time and absolutely knows she is hopelessly in love with them.
(Lucy meets her daughter for the first time that day)


Ok. Its fiction. But I started to think about what if I awoke every day (not woken by the pitter patter of little feet running to jump on me and steal my blankets, but just naturally woke) to find a video tape of my life. What would be on it? Like Lucy watching footage of her recovery from her accident, I would recoil from the pain of my marriage and divorce, but be overwhelmed by the miraculous birth of my son, hurt again by his autism diagnosis, but overjoyed at our day to day life. And even though the marriage and divorce were more painful than I could bear, they made me who I am today, and I am happier, content, and more satisfied with my life now than I have ever been. Ironically, that all came from making a 'bad decision' instead of being fearful of making a bad decision as I had previously been. (Live in love, not fear).  Yes, a lot of it is really hard, and there are many many tears, but the awesome stuff is SO AWESOME. And there are great moments of cuddles and tickles, the moments I always dreamed of having, I now have. Even today I have spent much of the day just watching my son in amazement; he fascinates me.

So when I realized that I AM IN LOVE WITH MY LIFE, that brought back the glimmer that 8 sleepless and virulent weeks had sapped out of me... and it didn't hurt that my little man happily entertained himself on YouTube all afternoon either.

Love. Not fear.

Sunday 24 April 2016

Connection. Rejection.

In her 2010 Ted Talk, Brene Brown says "Connection is the reason we [humans] are here". I believe it, and yet connection continually eludes me.

Turns out I am not alone in that feeling.




I am writing this blog entry in my art therapy journal from my online Brene Brown art therapy course. (We'll get back to that in a second.) I am writing in my journal at the beach, about 100 metres away from where my non-verbal 5 year old ASD son is playing with his dad... and his 2 year old half- brother, and his dad's second wife (who is inappropriate because of her original relationship to me and my son's dad; but she and my son's dad have a child together now so it ain't going away, and its not my story to tell online). At this very moment, rejection is screaming in my ear and jumping up and down on top of my head. But this rejection has been thrust in my face long enough, that while I feel the constant stab, I have become accepting of the pain. It adds a few clouds to the day, but it no longer ruins it. I only add this because it plays into the vulnerability of what I'm writing about at the moment.




Back to the Brene Brown art therapy course... I am taking it a second time because I was invited to be part of a local group of people doing the course for the first time. Something nagging deep inside me told me I should do the course a second time because there was probably something I missed the first time. The first sections of the course are about Connection and Courage. I focused mostly on Courage my first time through because that's what I needed at the time.

 "We get courage by couraging," Brene says, and whether I wanted to practice courage or not in 2013, (NOT was the case) I had to. And I did develop a lot more courage (though I still need to consume large doses of it every day, so I guess that means I'm still amassing it?)

Three years after the first time I read Brene's book, "The Gifts of Imperfection", the theme that is emerging for me is Connection, which my heart's knowing grin tells me that I quite purposely glossed over these pieces the first time I did this course. I just didn't have capacity to look at this needy part of my life the first time. But I guess I did so well with the courage piece that I now have courage to look at my difficulty with Connection.

Like the research subjects Brene refers to in her 2010 TED talk "The Power of Vulnerability", I can't really tell you much about connection, but I can tell you a whole lot about rejection. And as I bring up this topic with friends who aren't necessarily intimate friends, but whom I feel free to speak deeply with, I hear much rejection from them too. Rejection (or lack of inclusion) from syblings, parents, colleagues, friends, and lovers. Then there's those who are identified as a minority, for whatever reason, who are also not included by society at large.

I have to wonder why so many of us who are confident and capable and loving and loveable LACK close intimate relationships of the friendship variety, (community?) causing us to feel so alone. Brene would probably say its because we're not being vulnerable enough, with ourselves, with our loved ones, with our God.

I would agree. But some of us are working on being vulnerable and are doing really well at it, even though it hurts. Many of my colleagues and acquaintances are clinical therapists, and they know how to achieve relational intimacy and they are doing they're best at it, but they also say they are lacking close friends.

Why are so many of us lacking close friendships then?
 
Why do I hear and see so many people saying,
"I have lots and lots of acquaintances, but I don't really have any friends."

In my city, I think the astronomical cost of living is taking its toll on people's ability to nurture the main thing that gives us meaning in life: human connection. That's a big factor. But that's not the only factor. I'd bet we'd find just as many people in affordable cities who are surrounded by acquaintances and still feel lonely.

I think it might have more to do with the way western societies are all about the individual pursuit of happiness, whereas eastern cultures tend to be more about the wellness of the whole group... the family unit, or even the community. While it might seem like a good thing for an individual to succeed and actualize their potential, the problem that emerges is that when a person fails to actualize, all the failure falls on that one person.[Credit: I'm pretty sure I got this individual vs group mentality stuff either from Richard Rohr, Dacher Keltner, or both.] When group/family wellness is the goal, then when people fail together, they are still together. Its not as devastating... because "connection is the reason that we are here"... so you haven't lost everything. You still have the connection. (Unless you are a character in Game of Thrones, then if the group fails, you all die!)

Which brings me back to my lack of connection.

I would say I am quite good at connection, when its a fairly safe bet; like I am awesomely connected with my son. But his autism prevents him from socially reciprocating. (He is full of hugs and cuddles and tickles and wrestling, but he can't share memories with me, or celebrate holidays, discuss things, etc.)

I am great at connecting with colleagues at work who also want to be connected, but I don't belong in any identified groups, so I get left out a lot.

I am disconnected from anyone I need to be connected to, but with whom it is inconvenient to be connected to. Autism  throws a giant wrench into connectivity because a few autism outburst from the past have basically kyboshed any future connections because people are still traumatized from the previous ones. The result is my son and I are on our own. And it doesn't feel good. I think we need to belong to somebody or something.

I felt this lack of belonging for my son and I already last year. I attempted to fix it by 'building a team' around my son, in terms of support and respite people. I asked about 8 trusted families about being part of our team. They all considered it heavily, and all of them (many with tears) said they're just too busy with sports/church/health issues, etc. More rejection... for really good reasons, but still rejection.



I want to get real about this Connection thing. Because Brene is right. Connection is everything.
      - I really like the beach.
      - I really like the beach by myself.
      -  But after 10 times at the beach by myself, it would mean so much more to share it with  
        someone (friend or otherwise).

Right or wrong, I have given up on people I should be connected with. I am pondering that maybe the way for me to achieve real connection in an on-going way might be more about building my family than building-in play dates. There are others out there who don't even have 1 person they belong to. So maybe we can belong together.

Ironically (or probably not if you're a shame researcher like Brene Brown) it will take a lot of courage if I do proceed with building my family. It's unknown. It's unpredictable. It's forever. So it's scary. But it will also take a lot of courage to continue to not-belong as we currently sit.