Saturday 2 July 2016

Love, Life and 50 First Dates.

So the latest ASD development in me and my 5 year old's life is that he no longer sleeps his meager 10-11 hours a day. Now he sleeps 8-9 hours a day, and he doesn't go to sleep until 10 or 11pm. This is a tough adjustment for me as, even when childless, I was always ready for sleep by 9:30pm. For the last year or so, he's gone to sleep between 7-8pm, leaving me an hour or so for personal time and unwinding before bed. I don't get that anymore.

I've decided to cope with this 8pm-11pm time lag in his bedroom, waiting for sleep, by reading.

This weekend I was pleasantly surprised to find an entire change of perspective from an unexpected source: Wildflower by Drew Barrymore.




Drew was talking about her movie magic with Adam Sandler, and specifically referencing the movie 50 First Dates, which I love. If you haven't seen it, its rom-com about a marine biologist who falls in love with a girl who was in a car accident, causing her to lose her memory every time she goes to sleep, effectively re-setting her brain back to the morning of the day she had her accident. The theme of the movie that Drew references in her Wildflower book, is that you have to fall in love each and every day with your life that you have. (Honestly, I'm not sure I noticed that theme in the movie; it was purely entertainment for me).



But reading Drew talk about falling in love with the life that you have (and she had a lot of negatives going on too), I started to think about that question for myself. And I think I am in love with the life that I have -- I really can't imagine life without my profoundly autistic and adorable son -- but I let myself get so overwhelmed and flustered that I don't have ability to realize and/or experience the love half the time. Not unlike those of us who love the surf, but its like I'm always caught in the barrel of the wave, I can't tell which way is up, and it makes me forget that I love the surf, because it always ends up becoming about survival. And that lets fear in. And fear steals the love if you let the fear reign.

And yet simply realizing that I AM in love with the life that I have, re-energized me from an 8 week slump of extreme exhaustion and overwhelm (ok, I also got a rare 10 hours of sleep the night before, so that might be part of it too). So how do I get back to being in love with the life that I have, everyday?

My thoughts returned to the resolution of the 50 First Dates movie (spoiler alert). Lucy's (Drew's character) new husband and family help her life to move forward from that one day where her memory starts from every day, by making her a video tape. Now every morning when Lucy wakes in her bedroom there is a video tape, and it shows her that she had a car accident, footage of her recovery and her current memory problem. Then it goes on to show that she met and fell in love with this awesome guy (Adam Sandler's character) and they got married, and had a kid who is now 4 or 5 years old, and while it looks just like her bedroom before the accident, it turns out they're actually on a research vessel in Alaska with their daughter. And Lucy cries in amazement as she watches these incredible events of her life unfold in front of her over a few minutes. At the end of the tape she is invited to join her family (including her dad) up on the deck for coffee and everyday she meets her husband and daughter for the first time and absolutely knows she is hopelessly in love with them.
(Lucy meets her daughter for the first time that day)


Ok. Its fiction. But I started to think about what if I awoke every day (not woken by the pitter patter of little feet running to jump on me and steal my blankets, but just naturally woke) to find a video tape of my life. What would be on it? Like Lucy watching footage of her recovery from her accident, I would recoil from the pain of my marriage and divorce, but be overwhelmed by the miraculous birth of my son, hurt again by his autism diagnosis, but overjoyed at our day to day life. And even though the marriage and divorce were more painful than I could bear, they made me who I am today, and I am happier, content, and more satisfied with my life now than I have ever been. Ironically, that all came from making a 'bad decision' instead of being fearful of making a bad decision as I had previously been. (Live in love, not fear).  Yes, a lot of it is really hard, and there are many many tears, but the awesome stuff is SO AWESOME. And there are great moments of cuddles and tickles, the moments I always dreamed of having, I now have. Even today I have spent much of the day just watching my son in amazement; he fascinates me.

So when I realized that I AM IN LOVE WITH MY LIFE, that brought back the glimmer that 8 sleepless and virulent weeks had sapped out of me... and it didn't hurt that my little man happily entertained himself on YouTube all afternoon either.

Love. Not fear.